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We all know someone living with Multiple Sclerosis

Dianne and Tristan have Multiple Sclerosis (MS). This is their story.

The Brissie to the Bay ride to fight MS is on next weekend Sunday 16 June 2019. Grow Medical’s midwife and paediatric nurse Alison Chambers is riding for a school friend, a uni friend, her Aunt and many patients she has met over the past 20 years. 

Read on to hear Tristan and Dianne’s stories of adversity, optimism, and maintaining a sense of purpose.

“I’ve got MS, but MS doesn’t have me”

Dianne is a retired police officer, and has had MS from early in her career. She managed to work her entire career until retirement age, and achieved the impressive milestone of 40 years of police service. She lived with MS for over 20 of those years, enduring misplaced offers of help, suggestions to quit and the occasional embarrassment of falling at work.  She is determined to prove that people with MS can remain a productive member of society.


Dianne proudly breaks stereotypes and demonstrates that a disability does not equate to an inability, including once appearing in uniform as a police officer for an MS television commercial. She sums up by saying “I’ve got MS, but MS doesn’t have me”.


Having lost the majority of his vision, and requiring an electric wheelchair, Tristan is markedly disabled by any definition. Despite this he retains an optimism for life. Tristan says “there is no plan B. I used to have a really big life, but a lot friends have dropped off. Sometimes you don’t feel like getting out of bed, but you just have to. You just have to keep going otherwise you perish.”


As a testament to this fighting spirit, Tristan completed a degree in pharmacy after his original diagnosis, inspired by the dream of finding a cure for MS. He worked for some time in pharmacy, but had a big relapse of his MS and became unable to work due to his symptoms. Still, he maintains an active interest in future therapies to stop MS rather than treat the symptoms. As Multiple Sclerosis results from a loss Myelin (the insulating coating of the nerve cells), he is excited about some new therapies that may be able to replace this Myelin sheath; he describes a case of a woman who was confined to a wheelchair who was able to walk along a beach after receiving the novel treatment. He is disappointed that previous treatment he has received means that he is not eligible for this potential new therapy.

Multiple Sclerosis patient and nurse

Dianne and Tristan agree that the phrase “sometimes beaten but never conquered” is a good analogy for the way they approach life with a mixture of struggle and optimism.

For both, the social impact of the condition has been large. Fatigue has been a problem for Dianne, as she often lacked the energy to socialise after work. She has devoted herself to service to others, through her career at work, volunteering for meals on wheels, contributing to the Redbank school of art, and caring for her elderly mother. Tristan has maintained a sense of purpose by composing hip hop music, and has cleverly overcome the challenges of visual impairment by using a video magnifier to continue composing. One of his beats has recently been published in an album by a Brisbane rapper and is available on Spotify.

Multiple Sclerosis is no piece of cake. Tristan is only 37, and describes having recently fallen, spending 6 hours on the floor unable to get up. He makes the most of modern technology by using an apple watch to be able to appeal for assistance when needed in situations like this. Unfortunately he had taken the watch off when he fell. He remains light hearted “If you can’t laugh at yourself what hope have you got?”

So, what would Dianne and Tristan like you to know?
We don’t want to be treated any differently. Don’t treat us like we are disabled. We are still normal people, and just have limitations. We will ask for help if we need it. Tristan notes how variable MS can be - he is in a wheelchair after 13 years of symptoms. Others in their 60’s can still remain mobile after 40 years of symptoms.

Both want to see the proceeds of this year’s Brissie to Bay ride for MS be used to search for a cure, and to raise awareness that MS is diverse both in symptoms and the people affected. They appreciate the sense of solidarity that comes from so many people devoting time and energy to raise money and awareness.

Be sure to continue this conversation. Challenging stereotypes and creating an inclusive community is a task for all of us.


Growlife Medical is proud to have raised money to find a cure for MS.

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